Faye Adams

Hi, I’m Faye Adams.

I’m a wife to the love of my life—the one who keeps me grounded and makes me laugh even on the hardest days. I’m a mom to two amazing boys, now 15 and 13, who we adopted in 2013 and who bring more joy and purpose to my life than I could have ever imagined. I’m also a daughter, sister, aunt, cousin, and friend. Those are the titles that define me most, far beyond any diagnosis.

In March 2020, at the height of the COVID-19 pandemic, I was diagnosed with transthyretin cardiac amyloidosis (ATTR-CM)—a rare, progressive, and currently incurable disease that I inherited from my dad, who passed away from the same condition in 2010. My diagnosis came during one of the loneliest seasons of life, leaving me uncertain about what lay ahead.

Today, Amyloidosis affects my heart, stomach, and nerves. In simple terms, my liver produces a protein that misfolds and turns into a glue-like substance that travels throughout my body, sticking to organs and nerves and making them work harder than they should. There’s no cure yet, but there are treatments that can slow down the progression—and I’m doing everything I can to make the most of every day.

Over the years, I’ve poured myself into learning everything I can about this disease—its origins, its treatments, and its impact. My hope now is to help others understand it too. I believe ATTR-CM must become a name recognized by doctors everywhere, so that patients like me are seen, understood, and diagnosed earlier.

Click here to read all of Faye's articles on Heart-Failure.net.