How do you feel about using technology to help manage health? Take our survey here.
caret icon Back to all discussions

Has anyone been diagnosed with cardiac amyloidosis?

Cardiac Amyloidosis is a severe, progressive, and fatal disease caused by accumulation of misfolded proteins (Amyloid) in cardiac tissue.

Having this disease recently Dx did not make me feel too good. I already had a pacemaker 9 years old in 2021 and 3 stents and recent Femur to femur lithotripsy surgery on my L&R main lower leg arteries.

  1. I commend you for being so open about all that you have gone through. I can't imagine how difficult it was must be to receive a new diagnosis. You have every right to not feel too good about this as I know many people here can relate to that feeling. I would recommend speaking with your doctor about any questions/concerns you have about this new diagnosis if you haven't already done so. One thing I find helpful is writing down all my questions and concerns right when I think of them. I do this so that I don't forget about them or leave an appointment thinking....I completely forgot to ask about that!! I can imagine that receiving a new diagnosis is overwhelming enough that it's hard to think at that moment as I know at least I am that way. Hang in there! We are here for your support! Best, -Kim (heart-failure.net team member)

    Please read our rules before posting.