Community Views: Why You Come to Heart-Failure.net

Living in the digital age, many resources exist at the end of a search for support with a chronic illness. We wondered what makes this community stand out for you. With all the options available to you, we are glad you spend time here.

To learn more, we asked our Heart-Failure.net Facebook community members to finish this sentence, “I come to this heart failure community page because…”

One member summed it up succinctly: “It helps me to cope.”

Here is a look at some of the other things community members shared.

Newly diagnosed

A few of you mentioned finding this community just after your heart failure diagnosis. Having access to resources helps you feel less overwhelmed. Connecting with others who have been where you are is reassuring.

“I was diagnosed with heart failure 16 months ago and was looking for information and to see how others deal with this disease.”

“I’m new to heart failure and need all the information I can get.”

To gather knowledge

The saying “knowledge is power” resonates when diagnosed with a chronic illness. You want to learn as much as possible about your condition. Understanding the disease helps you manage it. You find reliable information from the articles and comments.

“Have gotten information from this site.”

“I have heart failure, and I want knowledge and support.”

“I might learn something.”

“To learn from others and their stories and tell mine.”

To feel less alone

Living with a chronic illness feels isolating. When you are among friends and family, you may still feel alone. In this community, you find connection. You meet others on a similar journey. Knowing you are not alone is affirming.

“I need to have someone to talk to who has congestive heart failure.”

“I want to know my issues aren’t just in my mind.”

“Great resource for information and knowing I am not the only one.”

“Because it helps me to know I’m not the only one going through this.”

Support

In this community, you find encouragement. You come to both receive and offer support. The journey of heart failure is one only other warriors genuinely understand. Sharing and hearing stories connect you. While you may never meet in person, fellow members become friends. You inspire each other to keep living fully with heart failure.

“I wanted to join a family of heart failure warriors who communicate with us all their concerns and experiences.”

“I am a heart patient and trying to identify with other patients.”

“I wanted to connect with people.”

“This community is filled with compassion and caring for all.”

“I like encouragement and giving it.”

Someone I love

Several of you have a loved one living with heart failure. You come to the community to learn about this disease. Staying informed helps you compassionately care for your loved one. Empathy begins with understanding.

“I love my husband.”

“I lost my mom and grandma to congestive heart failure.”

“I want to learn all I can to understand everything going on with my husband.”

"My mom has heart failure with reduced EF, and I wish I could find a way to make her stronger."

From your many comments, it is clear this community positively impacts how you navigate heart failure. We are grateful you choose to be here. It is a privilege to be part of your journey.

Do you have a heart failure story? Click the button below to share with our community!