Refuse to Fear

Lisa, one of our patient advocates, shares how she refuses to fear despite her Brugada Syndrome diagnosis and the COVID-19 Pandemic. Share this video or your own story with the hashtag #refusetofear.

Resources for further reading

The foundation mentioned is the SADs Foundation; they can be found at SADS.org. They have been frequently posting Facebook live events to answer questions about SADS conditions – such as Brugada Syndrome, Long QT Syndrome, and Timothy Syndromes – and you can view the live videos and replays on their Facebook Page.

If you want to read more about some frequently asked questions relating to COVID-19 and various heart conditions, you can read an article by Professor Sanjay Sharma at the Cardiac Risk for the Young's website here. Though your best source of information for your specific condition and risk is a conversation with your doctor.

You can also explore the wealth of resources we've gathered on this site on self-care in these uncertain times here.

How do you #refusetofear? Share in the comments below! We'd love to hear from you!