A thank you to the parents who take care of their sick kids. When you think of heart failure you don’t think of children. But the fact of the matter is there are children who deal with heart failure for all different types of reasons. With that comes parents.
No one asks for this
No one asks for their child to get sick, no one wants to spend endless nights at the hospital, no one wants to watch their child being poked and prodded with needles. But you do it. You are by our side every step of the way, and for that, there is no amount of thanks in the world we could ever find.
When we are in the hospital there is one thing that gets us through this awful journey: our parents. We know what you are giving up for us and that you don’t want to be there, but we also know that no matter what happens you would never leave our sides. We know that when the doctors were talking to us about something awful you wanted to cry but you didn’t. You held those tears back and put on your game face so we would feel safe because that is exactly what we needed at that moment.
We know you feel guilty
We know you feel guilty for leaving our siblings at home while taking care of us, and we wish we could take that feeling away. We know that one of you is working overtime to pay our medical bills while the other does not leave our side. We know you would take the pain on for us if you could. We know you love us more than anything in the entire world. Sometimes we are too tired, or it might be too hard for us to say it at that moment, but we know - and we want you to know - we love you just as much right back.
An isolating feeling
I can only empathize with parents who take care of their sick kids. I’m sure it can be an isolating feeling. If you are new to this, make sure you try to talk to other parents who might be going through something similar to you. Hear their stories and tell them yours so you know you are not alone.
Just a few years ago when my mom and I were at the hospital she ran into a young dad who told my mom about his sick baby. At this point, I had been healthy for many years. She talked to the young dad and they exchanged stories. He told my mom his worst fears and she shared with him that those were once her fears as well, but it will be okay. I can remember watching my mom tell me about their conversation and how happy she was to have used her knowledge to help another parent even if it was just for a moment.
You were there for us
As we drove home, we talked about how we made it. How we did it together and how I get to live very close to “normal life”. You will have your moment like this and it will make all the awful moments go away. I want all the parents out there to know that no matter where you are in your journey, we know you were there for us.
What can someone do to better support you? (Choose all that apply)