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Karen Parete

Karen is a mother of two daughters both diagnosed with life-threatening medical conditions, Alyssa 25 and Nicole 21. Karen brings us her perspective on accepting, absorbing, and ultimately navigating the challenges of a family with children who have severe medical needs. Alyssa her oldest daughter was born with idiopathic cardiomyopathy and went into heart failure at two weeks old. Read more.

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Living and Learning in 2021 as a Caregiver

As I look back over the 26 years I have cared for my child, first in heart failure and then through her heart transplant, I never saw a situation like...

By Karen Parete

4 min read

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Care for the Caregivers

One of the best volunteer programs I’ve seen and experienced myself was at Columbia Children’s Hospital. The caregivers were invited once a week to a beauty treatment. The program was...

By Karen Parete

3 min read

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Medication Tips

Karen, a caregiver of 25 years, offers three helpful tips to stay on track with your medications...

By Karen Parete

1 min read

Reach Out

As a patient or caregiver, I found it extremely important to reach out to others who have been in similar situations. Health Union and internet support communities were not yet...

By Karen Parete

2 min read

On His Terms

We lost my father this year to congestive heart failure. This is not a story about sadness and resentment but rather a tribute to my dad who lived a happy...

By Karen Parete

3 min read

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