caret icon Back to all discussions

My family not interested

Diagnosed 6 yrs ago, my health has deteriorated so much, out of breath as soon as I do anything. I used to see family all the time I cooked Sunday lunch for everyone all usual things mums do, now I cannot do anything, what is really hurtful noone ever rings to see if I'm ok or need anything. I am at home on my own 24/7 get shopping delivered, never speak to anyone, I wonder what is the point of living. I have come to terms that noone really cares, I wonder how many people are living like this. If I could walk I would go shopping,get involved with groups etc, heart failure sounds just like just something old people get but it's much worse than that, I feel as if I am just waiting to die.

  1. Hi there, we are glad to have you as a member of this community. I'm so sorry to hear that the last 6 years have been difficult for you and has led somewhat to isolation. It must be disappointing to not have your family support you after you spent much of your life supporting them. I'm linking an article that discusses finding support in the heart failure field. Importance of Community | Heart-Failure.net I wonder if local heart failure clinics have zoom meetings that you could join. Perhaps you could meet more people this way? I hope that this helps! Wishing you all the best, Lauren (Team member)

    1. I just came across your post and wanted to say I’m sorry you’ve been feeling so alone. Even though it was a while ago, I hope things have gotten a bit better since then. You didn’t deserve to be left out like that. You're not alone, others do care.

      1. Heart failure isn’t just a physical struggle; the emotional toll can be overwhelming too, especially when you feel forgotten or isolated.

        1. It’s not just about the physical stuff, feeling so alone and like no one notices or cares, can hurt. That part is just as hard to deal with. No one should have to go through all this without support. Sometimes, just knowing someone else understands even a little can make a difference.

        2. Hi there, thanks for sharing. Support is very important especially with heart failure. Many heart failure clinics have support groups associated with them. Does yours have a group? -Lauren (team member)

      Please read our rules before posting.