Hello. First, thank you for sharing. Second, I'm so sorry you're experiencing the pain you describe.
You're correct, we never know what may happen to us later in life. You expressed that you're able to function; but also worry a lot. Which is completely understandable. You wouldn't be human if you didn't. I believe the pain you describe would affect most people in a similar way. Especially considering it also affects you at night; and when you're trying to sleep. Do you have a therapist or support person you can share with judgment free? Having a support team to release your thoughts may help ease your worrying (and pain).
I currently take a statin for CAD (coronary artery disease); but I hadn't heard of small vessel disease until you shared your personal journey with it. From what I've read it occurs when there's blood vessel damage. I know headaches can be debilitating and affect daily living. However, are you able to do any exercises at home? Have you noticed any improvements with medication? If not, have you considered discussing a new treatment plan with your team?
You mentioned your research; but I wanted to include a link to one of the sources I read. I really hope you're able to get some relief soon. We're here to support you as best we can. Take care. ❤️ Tina Marie (heart-failure.net Team Member)
https://my.clevelandclinic.org/health/diseases/21052-microvascular-coronary-disease