This isn’t the easiest question for me to answer because I am also a Lupus patient as well. I’ve been diagnosed with Lupus for 30 years now and before I had my h.a. in 2017, I managed to do most things including working and raising a child, going out with friends and dating (I was a single, divorced mother) normally. In other words I didn’t let it stop me.
I’m a Librarian (of all sorts) including a Medical Librarian and Editor. I’ve taught physicians and veterinarians how to research and edited articles for the medical and veterinary journals.
After my h.a., not that much changed until in early 2022 I developed thyroiditis. That affected my CHF and made it worse. For the past 3 years I’ve been seeing a wonderful Heart Failure specialist at a top University Hospital and he’s been trying to treat my CHF medically but it’s not working the way we want. I’m nowhere near a crisis but he wants me to have a defibrillator implanted and I also want to try and get a CCM or Barostim, both of which would make me feel more energetic.