Using social media with heart failure: We want your feedback!

I wouldn't use social media to discuss heart failure and other major health problems - and I use an alias to post here (and on my FB account). Insurance companies and bad players can mine social media to look for people with health problems to take advantage of (or deny coverage) - and link that data to other publicly/commercially available sources and data vendors, to acquire a full profile of you and your family.


It is *astonishing* how complete a picture companies can paint of you, your family, and your health problems, that IMO should not be anyone else's business, for either marketing or other (and nefarious) purposes. When I first saw how much can be gleaned about you and/or your family - I was horrified at how invasive it was. And you cannot expect this Congress to protect you - that simply isn't going to happen barring a disaster of staggering proportion (but by then the damage could be done).



As a data/privacy management professional - I wouldn't put anything on social media that could possibly be used against me. While I realize that pony is out of the barn for most - but I advise taking steps wherever possible to reduce your potential exposure.


Note that I will not permit an Alexa, or any other device of the type, in my house. I further recommend disabling it in your car, and disable Google Assistant/Siri on your phone.