Wrongful diagnosis of Heart Failure?? Advice please
My boyfriend went into Afib and when he was cardioverted they reported that his EF was 25%, cardiologist put him on Entresto 24/26 mg, it's been 3 weeks now and he was exercising 2 x a day, eating great, no alcohol and suddenly passed out in the kitchen leading to 3 day stay in hospital, concussion and 7 staples in his head. While he was in the hospital, the completed multiple tests, his echocardiogram came back normal with a EF of 55%, they advised him to discontinue entresto,...... he left not knowing what to do, so stopped the entresto and followed up with cardiologist that prescribed. The cardiologist instructed to continue to take entresto, he asked how could he go from 25% to 55% in 4 weeks, he told him it's possible...
Is it or when u come out of Afib you can't get a real reading and the 25% EF wasn't a true look at his heart? 3rd opinion scheduled in July at Cleveland clinic. 🤞 thank you
Hi Jennifer, thanks for joining this community! I'm so sorry to hear that your boyfriend has truly had a rough run lately. This must be so much to manage and worry about. I'm linking an article from our site that discusses heart failure medications. What Medications Are Used for Heart Failure? Enestro is medication in a class of drugs called ARNI, which are known to increase heart function over time. I think that your plan of seeking a third opinion is a great choice. The more information you and your boyfriend have, the better the plan moving forward. Please keep us in the loop. Best of luck! Lauren (Team member) I realize the limitations. I lived in MT. for 30 years. The medical care there is abysmal. But the Univ. Of WA is not THAT far away. Buses run that way. Heart Failure is no fun. Important to get a true diagnosis. Get an appt. No matter how far away. It takes months to get an appt. Even in the best circumstances. Look for ways to get there. Save your Pennie’s. And then go. I got into a study. Once in I am able to get state of the art care. It is worth the struggle,. I’m routing for all
Of us who have HF!
,
Thank you for sharing your perspective.
When there is a will, there is a way.
~Doreen (Team Member)
Thank you Lauren,.... " known to increase heart failure over time"?
,
I too am sorry to hear what you and your boyfriend have been going through.
It sounds like you have many unanswered questions. Hopefully the upcoming appointment will help provide some answers.
In the meantime, I will be keeping you both in my thoughts. He's quite lucky to have you looking out for him.
~Doreen (Team Member)
My goodness! That was a typo... I'm sorry. The medication is known to increase heart function over time. Thanks for pointing out my error. -Lauren (Team member)
Thank you
So frustrated with healthcare in Florida right now
,
I hear you!
I'm not in Florida but equally frustrated.
We can only hope and pray for improvement (some day soon).
~Doreen (Team Member)
