What to do when they can't find the cause for heart failure?
My dad is currently on respiratory system,this is his second time.First time he ended up on respiratory system was in September,thankfully he made it.When he was let go from the hospital,they put him on oxygen at home care.He was having some good and some bad days.In September they discoverd he has heart failure (he is 60yo) but the problem is that they can't find the cause of his heart failure.Treatment they are giving him clearly doesn't work and I don't know what to do.I came here to ask a question to possibly see if there is anyone similar to him and what is the process in treatment if they can't find the cause and treat that cause?I hope there is hope..Thank you and sorry if my english is not good.
Hi.
Thank you for the post and inquiry -- and your English is fine. Sorry that your dad is currently on a respiratory system. He is far too young to be having this type of a problem. Doctors are not able to see inside your body, so they will often times perform various tests to help them make an educated guess as to what is going on and what is the best treatment. Although, sometimes it is difficult to come to a definitive answer and treatment, as you are seeing with your dad. I am just curious as to what types of doctors are treating your dad? Is there a cardiologist involved in his care? Just curious. John. heart-failure.net community moderator Thank you so much for your reply.Yes there is cardiologist involved in his care,and when he was at home we even when to private cardiologist(one who got award for the being the best cardiologist in Croatia) and he also couldnt't find the cause of his problem,just put him on some treatments with pills,also a bunch of specialist saw him and all the tests he had done and eveyone says it is not possible to have this kind of heart failure with no apparent cause,something sped up the process very suddenly( he never drank or smoke and it isn't genetic) I'm also curies if anyone had their symptoms worsen after getting vaccinated?(Some doctors said it's possible because everything started 2 weeks after getting vaccinated and he only had one symptom of heart failure before getting vaccination whis is shortness of breath when exercising) I'm not trying to hate on vax just trying to find some answers to possibly help him...thanks Thank you for your update. I have heard of other cases like you are describing about your dad. Sometimes it is just difficult to find the cause of heart failure. It will be neat hearing what others have to say about your inquiry about experiencing heart failure after getting the vaccination. That is not a topic that I am an expert on, so I will hold back commenting on it. I am curious about something: How is your dad doing now? Is he doing any better? John. heart-failure.net community moderator
For years doctors couldnt explain what I had. First a heart murmur that led to hypertrophic cardiomyopathy that ended up causing heart failure. I finally have an after 17 years. So yes there is hope and im sure you will have answers sooner than I did.
Kimberly (Heart-Failure.net Team)Yes!! It took pain in my hands and legs to help me find out what caused my heart disease and that was only a few years ago.
Kimberly (Heart-Failure.net Team)
Hope you find out more information. A lot of things can cause heart failure. I have cardiomyopathy, coronary artery disease, diabetes, COPD, sarcoidosis, and sleep apnea. They don't really know which one caused my heart failure. If he had other health issues, it may have effected his heart. It is hard. I am only 56. I was diagnosed at 50. So, they thought I would be gone by now, but I keep going. Keep looking for answers but remember that treatment is the most important thing to dwell on and getting better. Take care.
Thank you for sharing. I agree, something it can be hard to figure out what caused the heart failure but focusing on treatment is what might help move the needle. As a doctor told me that helped, a really really crappy thing happened to you but it's in your best interest to keep on pushing. How are you feeling today? Morgan (heart-failure.net Moderator)
I'm sorry to hear about your dad. I was 48 when I had several heart attacks and told I have CHF. They cant find anything wrong all my tests came back perfect. No clogged arteries I;ve never had high blood pressure. Nothing can explain it. They thought maybe broken heart syndrome since nothing else could explain it. Then my ejection fraction was 15% now its 4%. Hopefully they will figure out something with your dad. I will pray for you and your family. Hugs, love and light..
I am sorry to hear about that. I had it happened to me out of the blue as well, and it was a mind bending experience. How you are coping mentally these days? How are you doing given your low EF? Morgan (heart-failure.net Moderator)
