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Sean Riley...Sean Riley was diagnosed with hereditary amyloidosis in March of 2019 and began treatment immediately. In his own words “Although this can...
“Doing What it Takes”: Effective Approaches for Navigating Life with ATTR...Nearly seven years have passed since my diagnosis and the beginning of treatment for hereditary amyloidosis. Happily, I am convinced that the...reactionscomments
Tips for Managing ATTR - CM: What Works for Me...For seven long years, the symptoms piled up: bilateral carpal tunnel, “trigger finger” in three fingers, peripheral neuropathy advancing up my arms...reactionscomments
My Journey with Amyloidosis: Turning Fear Into Purpose...Amyloidosis is a word I wish I had never had to learn. Between its many forms— like transthyretin cardiac amyloidosis (ATTR-CM), hereditary...reactionscomments
How My Life Changed After My ATTR-CM Diagnosis...When I was diagnosed with transthyretin cardiac amyloidosis (ATTR-CM), it felt like someone had taken the life I knew, shaken it hard...reactionscomments
Active 4 days agoThe Holidays with Heart Failure...Share your experience with managing heart failure around the holidays, or if this is your first holiday season with heart failure ask...reactionsreplies
Faye Adams...Hi, I’m Faye Adams. I’m a wife to the love of my life—the one who keeps me grounded and makes me laugh...
Afib episodes and shortness of breath...My afib is with me all the time , but sometimes it spikes and I feel very weak and light headed ...reactions1reply
Share Your Journey: Help Us Shine a Light on ATTR-CM...Heart failure has many causes, but one specific and often under-recognized contributor is transthyretin amyloid cardiomyopathy (ATTR-CM). This serious, progressive condition specifically...reactionscomments
Share your experience with ATTR-CM...Share your experience with ATTR-CM with the community. What is something you wish more people knew about this condition? Do you have...reactions7replies
Sudden puffiness of legs and feet. Irregular heart beats. High to low heart beats. 68 to 133 without symptoms of discomfort. ...Should I take an extra Lasix? Should I take an extra 1/2 (25mg) of atenolol later in the day?...reactions1replyTreatment
phantom chest pain...I have alarming chest pains but they now never find anything by the time I get to doctors...reactions1replySymptomsMental Health
What are some tips for mamanaging the fatigue of CHF?...This isn’t the easiest question for me to answer because I am also a Lupus patient as well. I’ve been diagnosed with...reactions1reply
Heart failure ...For the past 18 months I have suffered dreadfully from food and liquid sticking in my throat and more often than not...reactions3replies
Confounded Clara...I have been Gas Lighted by 2 Primary Care Physicians. I complained about breathing issues to one. He refused to order a...reactions1reply
My heart stopped but I thought I was just having anxiety ...I couldn't breathe. I was having a panic attack but something was different this time. Usually my daughter could calm me but...reactions1reply
MR. T.D.S....I had a mild heart attack 01/17/2017. The next day the physisian installed 2 stints. I only went to see him on...reactions1reply
