Active todayHow are you managing heart failure at home?...We are a research team trying to understand the pains of managing heart failure at home. It would be very helpful for...reactionsrepliesAgingComorbiditiesMedical Devices
Spreading Positivity: A Break from Heart Failure's Challenges...Some days it may be hard to see past the symptoms and daily challenges, for you or for those around you. Those...reactionscomments
Active 5 days agoWhat is a lesson that you've learned in life that you wish others knew, or that you knew sooner?...They say hindsight is 20/20. What have you learned that you wish you had known earlier or that you would like to...reactionsrepliesAwarenessTips & Advice
Active 5 days agoWhat is a routine that you have that brings you a special sense of joy?...Routine sometimes has a negative connotation. But the right routine can generate joy too. What rituals do you have that add light...reactionsrepliesAwareness
Active 4 days agoWhat is something small that makes you happy?...The simple pleasures in life can give it meaning. What is something tiny that brings you happiness? Why?...reactions1replyAwareness
Active 5 days agoWhat is the definition of a productive day?...Managing heart failure and its symptoms certainly can sometimes limit what we can do in one day. But it doesn't mean productivity...reactionsrepliesAwareness
Share Something with the Community...What is one thing you want the world to know about you that has nothing to do with your diagnosis?...reactionsreplies
What Is It Like Living with Heart Failure During the Winter?...Living with heart failure requires a constant, delicate balance—one that often shifts with the weather. While we’ve discussed how the summer heat...reactionscomments
Winter Challenges: Tips and Tricks...Have you implemented any tips or tricks during the winter months that make living with heart failure easier? Share your tips here...reactions2replies
Active 7 days agoUse One Word to Describe......If you could describe your heart's reaction to winter in one word, what would it be?...reactions16replies
Why long term dandruff ...I had many months dandruff problem please give ma some solutions I try lost of home remedies and sampus...reactions1replyDepression
Managing Heart Failure During Holidays...What are some ways that you may alter traditional holiday plans (dinners, meals, parties, etc) to best fit the needs and management...reactionsreplies
Hosting for New Year's: Recommendations for Caregivers...As the clock winds down on December 31st, many people typically gear up for a night of high energy, late-night toasts, and...reactionscomments
Swollen stomach ...My stomach swell most every day. What are some tips...reactions1replySymptomsDiagnosis
Share your feedback!...What topics related to heart failure (HF) are you interested in reading about or learning about?...reactions2replies
Sean Riley...Sean Riley was diagnosed with hereditary amyloidosis in March of 2019 and began treatment immediately. In his own words “Although this can...
“Doing What it Takes”: Effective Approaches for Navigating Life with ATTR...Nearly seven years have passed since my diagnosis and the beginning of treatment for hereditary amyloidosis. Happily, I am convinced that the...reactionscomments
Tips for Managing ATTR - CM: What Works for Me...For seven long years, the symptoms piled up: bilateral carpal tunnel, “trigger finger” in three fingers, peripheral neuropathy advancing up my arms...reactionscomments
My Journey with Amyloidosis: Turning Fear Into Purpose...Amyloidosis is a word I wish I had never had to learn. Between its many forms— like transthyretin cardiac amyloidosis (ATTR-CM), hereditary...reactionscomments
