“Doing What it Takes”: Effective Approaches for Navigating Life with ATTRNearly seven years have passed since my diagnosis and the beginning of treatment for hereditary amyloidosis. Happily, I am convinced that the...reactionscomments
Tips for Managing ATTR - CM: What Works for MeFor seven long years, the symptoms piled up: bilateral carpal tunnel, “trigger finger” in three fingers, peripheral neuropathy advancing up my arms...reactionscomments
My Journey with Amyloidosis: Turning Fear Into PurposeAmyloidosis is a word I wish I had never had to learn. Between its many forms— like transthyretin cardiac amyloidosis (ATTR-CM), hereditary...reactionscomments
How My Life Changed After My ATTR-CM DiagnosisWhen I was diagnosed with transthyretin cardiac amyloidosis (ATTR-CM), it felt like someone had taken the life I knew, shaken it hard...reactionscomments
Share Your Journey: Help Us Shine a Light on ATTR-CMHeart failure has many causes, but one specific and often under-recognized contributor is transthyretin amyloid cardiomyopathy (ATTR-CM). This serious, progressive condition specifically...reactionscomments
Now Closed: Heart-Failure.net 2025 Scary Symptoms Giveaway!The Heart-Failure Scary Symptoms Giveaway is now closed. Thank you for your interest! It’s October, which means it is spooky season. While...reactions4comments
Understanding Ejection FractionReceiving a diagnosis of heart failure often means learning a new medical language, and one of the most important terms you'll encounter...reactionscomments
“But You Don’t Look Sick”The thing about living with a sometimes-invisible disease is that it sort of feels like it is you against the world. You're...reactionscomments
Finding a Balance: Enjoying Asian Cuisine on a Low-Sodium DietFood is a huge part of our lives, bringing comfort, joy, and social connection. For those with heart failure, however, diet undergoes...reactionscomments
The Importance Of Family SupportI have been reading through the posts this morning. I found it enlightening to read how many people posting had the support...reactionscomments
Ineligible For A TransplantI have known I've had congenital heart failure since 2018. I got sent to a transplant doctor, and this year, on Aug...reactions2comments
Tracking My Fluid RetentionAfter two hospitalizations due to heart failure fluid retention, my cardiologist suggested I take on a CardioMems fluid sensor. Thus, a tiny...reactionscomments
Learning More About Cardiac RehabilitationHas your doctor talked about cardiac rehab? Maybe you've thought about it, but still have questions. Starting something new can feel a...reactionscomments
What Can You Do to Improve Your Ejection Fraction?Some people in this community have a low ejection fraction (EF). And we often receive questions like, "How do I improve my...reactions2comments
Palliative Care: A Personal ExperienceI am a heart failure patient who recently had my first palliative care consultation. I wanted to explain how I got the...reactions2comments
Late-Night ThoughtsI should be asleep. Instead, I'm pondering. About my health, and the shift of my life’s journey. Fighting this discontent that is...reactions6comments
When and Where Should I Seek Care?Editor's Note: This article is authored by Amber Blackburn, RN. As I do every winter, I have been sick for what seems...reactionscomments
Heart Failure 101: A Guide to Educate and Spread AwarenessFebruary is heart failure awareness month. What better way to honor this important time than by helping our community members to spread...reactions2comments
Why Advocate?Have you ever considered, "Why is health advocacy needed?" Communicating with healthcare providers may come naturally to some such as, asking questions...reactionscomments
What Is Medical Gaslighting?If you have ever felt dismissed by a doctor, you may have experienced a type of bias (prejudice) called medical gaslighting. Medical...reactionscomments
