PLC: My Neverending ChroniclesA recent stop by law enforcement triggered my afib, a rapid heart rate; incited anxiety, and brought about a new onset of PTSD. Prior to this incident, I have had...Reactions0reactionsComments2 comments
Dilated CardiomyopathyDilated cardiomyopathy is a heart disease that happens when the left ventricle is no longer pumping blood efficiently enough to the body. When I first got diagnosed in 2014, at...Reactions0reactionsComments0 comments
How to Get Our Steps InNow that colder weather is upon us, something that those of us with heart failure might be thinking about is: how do we get our steps in when walking outside...Reactions0reactionsComments0 comments
Heart Failure Dos and Don’tsAs with any chronic disease, it often takes time to learn the dos and don’ts of living with heart failure. Here are a few to keep in mind. Do seek help...Reactions0reactionsComments0 comments
Need Extra Income?I have found some additional money-making opportunities lately, and I wanted to share them in case anyone needed to make a few extra bucks! There are several options out there...Reactions0reactionsComments0 comments
Antibody Desensitization TreatmentSometimes, people with heart failure face the decision of being listed for a transplant. However, not everyone qualifies for a heart transplant. Having high antibody levels (also called highly sensitized)...Reactions0reactionsComments0 comments
PLC: Living My LVAD Best LifeLiving My Best Life AND Heart Failure? Is it really possible to use those two statements in the same sentence? Many of us understand that being a patient is a...Reactions0reactionsComments2 comments
Advocacy 101: Each One Teach OneAdvocacy was not the first thing that came to my mind following my diagnosis of end-stage heart failure. In fact, it was probably the furthest thing from it. However, advocacy...Reactions0reactionsComments0 comments
Why Are You Short of Breath? What a Respiratory Therapist Needs to KnowI work in a hospital as a respiratory therapist. I take care of anyone who is short of breath. If you come to the hospital experiencing severe shortness of breath...Reactions0reactionsComments1 comments
Managing Parenting and Fatigue When You Have Heart FailureBeing a parent is a tiring job. And life with heart failure often comes with fatigue. Together, fatigue and heart failure can leave you feeling completely exhausted, even defeated. Fatigue...Reactions0reactionsComments1 comments
Energy ConservationAs fall is here and we start having to think about bending over and putting shoes on (sandals no longer count), putting heavy coats on, etc., it has made me...Reactions0reactionsComments1 comments
Life Expectancy Studies: Changes Over TimeI am a respiratory therapist. I started this job in 1997. Back then, we were told by our teachers that the median life expectancy of heart failure patients was 2...Reactions0reactionsComments13 comments
How to Talk to Children About Your Heart Failure DiagnosisTalking with your children about your heart failure can cause major anxiety. You do not know how your child will react. You might worry that they will get upset or...Reactions0reactionsComments0 comments
CommunicationI think most adults have heard how important communication is in a relationship. Any relationship. From personal experience, I would basically agree. I have been with my boyfriend for almost...Reactions0reactionsComments0 comments
Are There Ways to Save Money on Medications?As a heart failure patient, I have watched my medical expenses boom. It stinks and can truly drain a budget. What I spend a year on pharmaceuticals is insane. Is...Reactions0reactionsComments5 comments
Reconciling Religion and Science in a Medical CrisisPeople tend to view religion and science as opposing forces. If something is rooted in religion, it can be scientific. If something is proven scientifically, then it cannot be the...Reactions0reactionsComments2 comments
Breastfeeding and MedicationThose that have been on my journey with me know that I had a baby girl 6 months ago. It has been the ultimate blessing to have her in my...Reactions0reactionsComments0 comments
Helpful Routines and Lifestyle Changes of Heart Failure Patient LeadersA heart failure diagnosis can come with so many feelings and changes that may need to be made. Our Patient Leader team consists of advocates who are living with heart...Reactions0reactionsComments1 comments
Ask the Patient Leaders: Finding the Right Fit for Your Care TeamReceiving a diagnosis for any condition, including a heart condition such as heart failure, can be difficult. New questions about the condition, and about you living with the condition, may...Reactions0reactionsComments0 comments
Join Our Health Leader Team!Would you like to share your experience with heart failure and help others who are also living with the condition? We’re looking to add new voices to our health leader...Reactions0reactionsComments0 comments